About the book
This website is a a companion to the "Living Well with Genetic Haemochromatosis", to be published in early 2027.
You can join the waitlist here!
CONTENTS
Prologue - One of the Lucky Ones
I'm lucky, yes. But it came as quite a shock.
Chapter 1 - So, You Have Haemochromatosis. What Happens Next?
A friendly guide to the early questions and finding your feet
Chapter 2 Iron - Too Much of a Good Thing
How your body uses iron, controls its supply, and what happens when the balance goes wrong
Chapter 3 - It's Genetic, Innit!
What your diagnosis means for the people you love
Chapter 4 - Recognising the Signs and Symptoms
Understanding the clues, the uncertainty, and when to ask for help
Chapter 5 - Getting a Diagnosis and Understanding Your Tests
Making sense of ferritin, transferrin saturation, genetics and the next steps
Chapter 6 - Venesection : Making Treatment Easier
A practical guide to the needles, the numbers and the small things that can make a big difference
Chapter 7 - Living Well with Haemochromatosis
Being diagnosed with genetic haemochromatosis can make you question some of the most ordinary parts of your life.
Chapter 8 - When Haemochromatosis Affects Your Health
One of the first questions people ask after being diagnosed with genetic haemochromatosis is whether the condition has already affected their health.
Chapter 9 - You're Not Alone
Being diagnosed with genetic haemochromatosis can change the way you think about your health. It may also change how you think about yourself.
Chapter 10 - Looking Ahead : Living a Full Life
Haemochromatosis may be something you live with for the rest of your life. But living well means iron overload doesn't define you.
References & further reading
More on the science, controversies and all.